About Tigerlily Foundation
Tigerlily Foundation is a national breast cancer organization dedicated to educating, advocating for, empowering, and supporting young women, especially women of color and other underserved populations, before, during, and after breast cancer. Through our programs, we strive to transform lives and systems by addressing disparities and creating equitable access to care, research, and clinical trials.
Position Summary
The Director of Clinical Trial Access and Partnerships lead Tigerlily Foundation’s work to expand equitable access to clinical trials as part of the breast cancer care journey. This role focuses on connecting women of color, young women, and other marginalized populations to accurate information, supportive resources, and opportunities to participate in trials when they choose. The Director designs and implements national strategies that improve awareness, access, and representation, while ensuring all outreach and engagement activities are transparent, ethical, and compliant.
This position also oversees the lifecycle of community-to-trial engagement, from education and identification through referral, tracking, and reporting. It ensures that data systems and communications meet HIPAA, IRB, and Good Clinical Practice standards, and that all activities uphold Tigerlily’s commitment to health equity, inclusion, and cultural competence.
Tigerlily Foundation does not conduct clinical trials, but partners with funders, CROs, research teams, and clinical sites to ensure that historically underrepresented patients are fully informed about clinical trials as an option in their care. The Director works closely with the Director of Community Engagement and Clinical Trial Equity to align education, outreach, and data-driven approaches that strengthen trust, transparency, and participation.
Key Responsibilities
-
Design and lead national strategies that increase awareness and equitable access to clinical trials for underrepresented communities.
-
Build and sustain partnerships with funders, CROs, research teams, and clinical sites to align access and engagement goals.
-
Develop and manage compliant outreach and referral processes in collaboration with sponsors and research partners.
-
Coordinate with Peer Navigators and outreach staff to ensure accurate study information, clear communication, and culturally responsive engagement.
-
Oversee data management, reporting, and privacy compliance across all program activities, ensuring alignment with HIPAA, IRB, and Good Clinical Practice standards.
-
Maintain and optimize CRM systems such as Monday.com to track outcomes and report metrics to funders and internal stakeholders.
-
Contribute to grant proposals, renewals, and reports by providing validated data, access outcomes, and partnership impact.
-
Develop accessible, culturally grounded educational materials to promote informed decision-making about clinical trials.
Qualifications
-
Minimum 7 years of experience in clinical research, patient navigation, public health, or health equity programs.
-
Proven track record advancing health equity and inclusion for marginalized communities, particularly women of color and those facing barriers to care.
-
Support funder impact reports, grant deliverables, and renewal proposals by providing validated data, access outcomes, and partnership impact.
-
Strong understanding of HIPAA, IRB, and Good Clinical Practice standards.
-
Demonstrated skill in data management, reporting, and CRM system use (experience with Monday.com preferred).
-
Ability to analyze program data, prepare accurate reports, and use insights to drive strategy.
-
Exceptional written and verbal communication skills with the ability to translate complex information clearly and build trust across diverse communities.
-
Deep cultural competence and experience engaging underrepresented populations in healthcare or clinical research settings.
-
Master’s degree in public health, Clinical Research, or related field preferred; certification in human subjects protection (e.g., CITI) strongly desired.